You can participate in the drawing regardless if you are attending the Mardi Gras Fête!
The last ten years have been an adventure for all of us! We have stuck together and supported each other through it all. We are honored to have you as part of our Rett Village. Together, we will continue to navigate all that comes our way.
Dr Alan Percy MD is the “father” of Rett Syndrome in the US. He started the first Rett Syndrome clinic in the US at Baylor/Texas Childrens before moving to the University of Alabama. He pioneered assessments of Rett Syndrome, initiated the NIH-funded Natural History Study (in 2003), has published over 130 papers on Rett Syndrome, and been a leader and participated in all of the clinical trials in Rett Syndrome. Alan has seen and taken care of more individuals with Rett Syndrome than anyone on the planet. Alan has been instrumental in offering advice at every step of the way for our Rett Clinic journey. Alan helped us kick off the Rett Clinic by attending one of our first sessions of the Rett clinic in 2012. Alan is mentor and friend of Tim Benke, your Rett clinic director. Alan knows more about Rett Syndrome than anyone (except Jane, see below).
Ms Jane Lane RN, BSN has been the right-hand person of Alan Percy for over 30 years. She has been instrumental in creating a successful, caring, and learned clinic environment for individuals with Rett Syndrome. With Alan, she has participated in all of the clinical trials in Rett Syndrome. She was project manager for the NIH-funded Natural History Study. Families across the country have utilized Jane as a 24/7/365 resource for their daughters (and sons) with Rett Syndrome throughout this time. Jane has published (40+ papers) in Rett Syndrome, focusing on issues that affect families most. Jane helped us kick off the Rett Clinic by attending one of our first session of the Rett clinic in 2012. She has been and continues to be a resource for our RN Clinic coordinators since we began. Jane knows more about Rett Syndrome than anyone (except Alan).
Thank you to our sponsors!
