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Town Hall - Rett Syndrome Clinic at Children’s Hospital Colorado

  • Rocky Mountain Rett Association (map)
 
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Are you having difficulty understanding the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family?

We’ll be sharing insights on this, and much more during our upcoming Town Hall Meeting – live-streamed – on Saturday, September 19, 2020, at 10am - 11:30am (MT).

Join us as Rettsyndrome.org, the Rett Clinic team at Children’s Hospital Colorado, and members from the Rocky Mountain Rett Association (RMRA) discuss clinical care recommendations and appointments, clinical trials, the research process, and family empowerment opportunities.

Then during the last half hour, we’ll be taking your pre-submitted questions. Please submit your questions during registration; however, if one comes to mind after you have registered, email it to Paige Nues.

Guest Presenters:

  • Children's Hospital Colorado: Dr. Tim Benke, Rett Clinic Medical Director & Tristen Dinkel, Rett Clinic RN Coordinator

  • Rocky Mountain Rett Association

  • Rettsyndrome.org State Representative: Heidi Hedges

  • Rettsyndrome.org: Paige Nues, host

There is no fee to attend this Town Hall, but pre-registration is required.

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Risers 4 Rett Tournament Fall 2020